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So This Is My Day...

12/7/2016

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I don't often put much on social media on bad days. As I lay here in bed I feel like rather than let my #mecfs ,#fibromyalgia , #bipolar ,#anxietydisorder & the myriad other health issues take me prisoner I need to own it.

It was my birthday Saturday. I did everything right for the fortnight before just to get out of the house for that one night. I got out. I had fun. I plastered a smile on my face, I hid the pain as best I could in an effort to avoid the pitying look people give when they see the crutch & the winces as I move.

I came home & I slept & a moment later it was Monday. Six orders to create & pack, I dragged myself around, still in pjs. Muscles felt like tearing, joints raw, vision reduced by migraine, chills & sweats, feeling like drowning, being pulled too hard by gravity. With swollen fingers, forgetfulness, confusion I worked through the pile. Exhausted. That kind of exhausted that doesn't let you sleep.

I know whilst I'm physically alone today there are more like me, painting a picture of normality as far as possible but shut away when it's too much to hide. We live with #chronicillness , #invisibleillness , with #chronicpain people don't believe even exists.

I've set up a group & I invite my fellow spoonie crafters & creatives to join me in this safe & creative space. No motive beyond wanting to support one another & raise each other up, maybe even have a chuckle or two. Its at Spoonie Crafters & I'd love you to join me. 
Take care,

Donna x

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#100daysofxstitch - spoonie rules

9/6/2015

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If you've been following my #100daysofxstitch daily cross stitches you'll have noticed they made an abrupt stop a few weeks ago.  What can I say, life got hectic & M.E fought back.

I'm actually really proud of how much I've managed to do these last few weeks whilst moving my best friend into my house.  I'm not good with change when it's focused on my little nest & jeez, there's been a lot of change!  I'm trying to keep reminding myself that after putting up with my house looking like I'm losing at Jumanji for the last month or so it'll be better than ever once we're all sorted.  I now have a decorated & carpeted bedroom - given I moved in to magnolia, magnolia & more magnolia 4 years ago it's about bloomin' time I put my stamp on the place.  I can honestly say it's growing to be home, rather than my shiny new house.  

I digress.

As you know by now change plus physical & mental exertion for me equals a fair amount of ZombieDonna.  Mmmmm, braaaiiiiiins.
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Zombie notebook from BlueSkyDesigns.co.uk - no affiliation, just a cool notebook ;)
Back to #100days...

I've been designing patterns each day, well most days throughout the process but just haven't had chance to actually stitch them between being mega-busy & dead to the world.  I've come to the decision, therefore, that I'll be carrying on with the project but spoonie style - in my own good time!

I'll do 100 days, they just won't be consecutive days all the time.  I would have finished the project on the 14th of August by doing one each day so I guess this is turning into my own little experiment to see just how much I get done when I'm gentle on myself working around my health rather than against it all the time.

So, keep your eyes peeled for more #100daysofxstitch & remember, if you subscribe to the newsletter all of the charts will be available to download for FREE.  :D

Thanks for reading

Miss Red x

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    Miss Red

    Seamstress and craft addict with too many ideas, too little time and not enough spoons!

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