I don't often put much on social media on bad days. As I lay here in bed I feel like rather than let my #mecfs ,#fibromyalgia , #bipolar ,#anxietydisorder & the myriad other health issues take me prisoner I need to own it.
It was my birthday Saturday. I did everything right for the fortnight before just to get out of the house for that one night. I got out. I had fun. I plastered a smile on my face, I hid the pain as best I could in an effort to avoid the pitying look people give when they see the crutch & the winces as I move.
I came home & I slept & a moment later it was Monday. Six orders to create & pack, I dragged myself around, still in pjs. Muscles felt like tearing, joints raw, vision reduced by migraine, chills & sweats, feeling like drowning, being pulled too hard by gravity. With swollen fingers, forgetfulness, confusion I worked through the pile. Exhausted. That kind of exhausted that doesn't let you sleep.
I know whilst I'm physically alone today there are more like me, painting a picture of normality as far as possible but shut away when it's too much to hide. We live with #chronicillness , #invisibleillness , with #chronicpain people don't believe even exists.
I've set up a group & I invite my fellow spoonie crafters & creatives to join me in this safe & creative space. No motive beyond wanting to support one another & raise each other up, maybe even have a chuckle or two. Its at Spoonie Crafters & I'd love you to join me.
Take care,
It was my birthday Saturday. I did everything right for the fortnight before just to get out of the house for that one night. I got out. I had fun. I plastered a smile on my face, I hid the pain as best I could in an effort to avoid the pitying look people give when they see the crutch & the winces as I move.
I came home & I slept & a moment later it was Monday. Six orders to create & pack, I dragged myself around, still in pjs. Muscles felt like tearing, joints raw, vision reduced by migraine, chills & sweats, feeling like drowning, being pulled too hard by gravity. With swollen fingers, forgetfulness, confusion I worked through the pile. Exhausted. That kind of exhausted that doesn't let you sleep.
I know whilst I'm physically alone today there are more like me, painting a picture of normality as far as possible but shut away when it's too much to hide. We live with #chronicillness , #invisibleillness , with #chronicpain people don't believe even exists.
I've set up a group & I invite my fellow spoonie crafters & creatives to join me in this safe & creative space. No motive beyond wanting to support one another & raise each other up, maybe even have a chuckle or two. Its at Spoonie Crafters & I'd love you to join me.
Take care,
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