I try not to post on-line when my M.E is really bad, mostly because I don't want to be that whiny negative person everyone gets fed up of, partly because I don't like people feeling sorry for me & treating me like some broken thing you have to be careful with...and partly because a flare often means just typing, sitting up & looking at a computer screen hurts.
Today is a bad day. Not one of the worst, I've made it out of bed & sort-of dressed - but the pain is enough to have me slightly spaced out on meds & to stop me in my tracks with productiveness around the business or anything social.
Times like these are hugely frustrating. They often come out of nowhere so can't be planned for or scheduled around. They might last a few hours, it might be days or weeks until my next good day. They are inconsiderate of all the things I should be doing or want to be doing, or of things I've paid out hard earned money for. The condition doesn't care about all the people I'll let down - but I do.
I want to be a good friend, a good daughter, a good sister, a good auntie. I want to be a budding entrepreneur, to be able to network & create & be a positive face for my business & brand. M.E doesn't care.
So, my weapon of choice is a notepad & pencil. Being stuck in a body that doesn't work with so much time in my head might churn out some pretty miserable thinking but it also pops out some great crafting ideas, & rather than let my foggy brain allow those ideas to evaporate I shall be noting them down.
And when I'm well enough to make the things in my notebook, they'll be awesome!
Today is a bad day. Not one of the worst, I've made it out of bed & sort-of dressed - but the pain is enough to have me slightly spaced out on meds & to stop me in my tracks with productiveness around the business or anything social.
Times like these are hugely frustrating. They often come out of nowhere so can't be planned for or scheduled around. They might last a few hours, it might be days or weeks until my next good day. They are inconsiderate of all the things I should be doing or want to be doing, or of things I've paid out hard earned money for. The condition doesn't care about all the people I'll let down - but I do.
I want to be a good friend, a good daughter, a good sister, a good auntie. I want to be a budding entrepreneur, to be able to network & create & be a positive face for my business & brand. M.E doesn't care.
So, my weapon of choice is a notepad & pencil. Being stuck in a body that doesn't work with so much time in my head might churn out some pretty miserable thinking but it also pops out some great crafting ideas, & rather than let my foggy brain allow those ideas to evaporate I shall be noting them down.
And when I'm well enough to make the things in my notebook, they'll be awesome!
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